Have you seen the newest challenge sweeping the internet? Check it out and #danceordonatetoNKH
Hope for NKH is a nonprofit corporation that was formed in the state of Washington on January 10th, 2006.
Sadly not much has changed in the treatment of Non-Ketotic Hyperglycinemia (NKH) over the years. We are very thankful to the doctors that have shown interest in NKH, but to continue to research treatments, prenatal diagnosis, and just to get a better grasp on this disorder and the effects of glycine more money is needed to fund the programs the doctors would like to pursue. In addition to more funds, we need new doctors interested in pursuing research in NKH in all countries.
So with substantial effort of a few key members of the NKH family we have put together
an organization that has rules, plans and great opportunity to help promote interest and
knowledge of NKH.